Lauren- 2011

Lauren- 2011

Wednesday, January 19, 2011

bumps in the road

just wanted to check in and say that we've had to hold off on starting the amino (is that spelled right??) acid study that Dr. Morton wants to do. It's a powdered form of two types of amino acids that we'll disolve into her milk and give in her feeding tube. We had hoped to start it last Friday but after another infection at her G-tube site she couldn't handle food for a few days. We're hoping to get it going tomorrow night. We need 5 nights of tx and we have to bag her pee (fun), freeze it, then get it out to Dr. Morton for analysis. I'll let you know what he finds out and what that might mean for Lauren. I'm hoping it means we'll be one step closer to understanding her rare metabolic disorder- and actually confirm that this is her problem at all.

missing catching up w/so many of you. know that i think of you guys throughout our crazy days and hope that you and your kiddos are doing well.

jen & lauren

Thursday, January 6, 2011

the puzzle

so her labs came back normal and Dr. Morton is a bit "puzzled"- never what you want to hear from a doctor about your child (and we just keep on hearing that!). So... he has more ideas and he still believes he can help us but we'll have to run more tests (which we knew) and hope for more answers and ultimately treatment(s) for Lauren.

Thank you for your prayers and concern- we appreciate you guys so much.
jen, lauren & fam