Lauren- 2011

Lauren- 2011

Friday, December 31, 2010

Happy new year!

We had a great appointment with Dr. Holmes Morton out at the Clinic for Special Children in Strasburg PA. Finally meeting a doctor who thinks he knows what's happening (and not happening) inside Lauren's brain and body AND who has experience treating the problem, successfully. So exciting!! We're very hopeful that Lauren will make great gains both physically and coginitively through Dr. Morton's treatment plan.

More tests and results await. A possible spinal tap, or two as well, yikes! But to finally see some light for her, and for us, is the best way I can think of for ending 2010.

Happy New Year everyone!
thanks for your love and support of Lauren-

Thursday, December 9, 2010

New doctor

Lauren will meet a new dr this month who may be able to help us figure out what is causing her demyelinating disorder- the problem that affects the covering around her nerves. Both her brain and spine have been affected by this problem and although the B12 injections seem to be helping the doctors are not sure why the problem happens in the first place. This doctor- Dr. Holmes Morton, has been working with the Amish and Mennonite (sp) community for a very long time and has become somewhat of an expert on rare metabolic and demyelinating disorders among this closed population of people. Lauren's orthopedic and neurologists have spoken w/him and he is very excited to meet her and see if he can help us.

That's the exciting news!!

The bad news is that Lauren will most likely have to endure a spinal tap to gather additional info for Dr. Morton- ouch. Hoping she will have minimal pain associated with yet another study- this poor girl!

Overall Lauren is doing really well... finally geting over a 8 week head cold- no kidding (and sorry to all the family and friends that we've shared that nasty bug with)... she attends a medical daycare 1x/week and LOVES "school!" Therapies are going great and she's getting stronger- over 19 lbs and growing.

Hope this update finds each of you and your families heatlhy and enjoying the bustle of this holiday season.

jen, lauren & fam