Lauren- 2011

Lauren- 2011

Sunday, October 17, 2010

calming down

lauren's spasms seem to be calming down on their own (yeah!!!) plus we started her on a new medicine last night that may also help her spasms become less severe and less frequent.

a quiet week (hopefully) for lauren- just checking in w/the surgeon on thursday to keep an eye on the abnormal growth at the g-site. last thursday she met w/dr. jones (duffy's partner) and had more granulation tissue removed from her g-site. thankfully it was not nearly as painful as the week prior. hopefully this week will go smoothly for her.

we had to reschedule the hemo appt as two of lauren's three dr.'s were running upwards of two hours late each! we hope to see him soon for an update on her cbc count.

thanks for keeping up with lauren.

Tuesday, October 12, 2010

lauren's night

pls keep lauren in your prayers as she suffered through one of her worst nights of spasms since her peek this past january. not sure what brought on the intense and frequent hip spasms but she was bothered by them from around 11pm through 6am today.

on a bright note, her g-tube site seems to be healing and not causing her as much discomfort as noted by her willingness to "crawl" around the floor today- yeah!

needing sleep....

Sunday, October 10, 2010

a rough time

lauren's g-tube site developed granulation, which is abnormal skin growth, that had to be removed on friday by her surgeon- an in-office procedure which consisted of burning the growth and cutting off the dead skin. she has been doing well during the day but at night she is experiencing a lot of pain. we'll be back to the surgeon's office next week to check that no more granulation is occuring but if it is the dr. will have to repeat the procedure.

we will also see her hemotologist on thursday to check on her macrocystosis and to discuss her B12 injections. hopefully that will be a good visit.

thanks for keeping her in your thoughts and prayers- she needs them.


Tuesday, October 5, 2010


lauren's mri findings came back unchanged which is good since there hasn't been any more brain atrophy or spinal lesions since her April mri.

the blood labs are normal for metabolic or mitochrondrial disorders and the muscle biopsy is still pending. great news and yet unrevealing as to what's up!

she has an infection around her G-tube (again, but different) and we're using a topical antibiotic to treat it... hoping that will work.

thanks for checking in w/our little medical mystery!


Friday, October 1, 2010


Lauren's MRI went very well and we hope to have the results by monday afternoon. she handled the IV and sedation medicines very well and is now home resting.

thanks for thinking of her!