results

lauren's mri findings came back unchanged which is good since there hasn't been any more brain atrophy or spinal lesions since her April mri.

the blood labs are normal for metabolic or mitochrondrial disorders and the muscle biopsy is still pending. great news and yet unrevealing as to what's up!

she has an infection around her G-tube (again, but different) and we're using a topical antibiotic to treat it... hoping that will work.

thanks for checking in w/our little medical mystery!

love,
jen