another skin infection on her belly from the g-tube site and a head cold have Lauren a little off her game. the antibiotics are rough on her digestion so we're doing quite a bit of laundry today. hoping to find something that will calm her system down while letting the strong medicine do its thing.

her amino acid did improve so that's a good finding- though we're not exactly sure what it means overall, we feel we could be getting close. will keep u posted on the progress w/her dr in strasburg.

thanks for thinking of lauren- hope u are well.
l,
jen

not too much happening in our world. just wanted to let everyone know that we're working through Dr. Morton's list of metabolic disorders and will meet again this week to check Lauren's blood counts and amino acid levels. we're not sure if the new amino acid is having any observable effect on her functioning but perhaps she needs more time.

the lumbar puncture will be next- hopefully not until a few more less invasive ideas have been tried but we'll see what Dr. Morton says later this week.

Lauren's g-tube is still not healed right and we're hoping that we can avoid another skin infection and/or silver nitrate treatment by using creams and gauze instead.

She did lose over a 1 lb with the recent stomach bug that we all had late in Janauary. hopefully she will regain that pound quickly and add to it as well. it's really hard to see her not eat and struggle with the little food that she does try each day.

Lauren attends a medical daycare twice a week and she LOVES it- the nurses are beyond wonderful and she participates in a little "preschool" program as well. Her PT meets her there now and she has made friends :)... it's a great break from our daily routine at home.

thanks for listening and we'll keep u posted w/any changes.
l,
jen