LP results

her LP results came back normal. Dr. Morton's genetic doctors are continuing to search for the proverbial "needle in the haystack" that gives an origin to her problem(s). So in the meantime, symptom management is the name of the game and maybe one day we'll have an answer and a path.

love to all,
jen, lauren & family

p.s. new pics on her blogpage

it's been a while

hi there. not much new to update since we're still waiting for any results from her april LP. i think i'm going to have to start stalking her doctor :) we're also awaiting her spinal MRI results from last friday.

she's not gained weight (but hasn't lost either) so her GI has asked that we ramp up her calories and we're trying to get her to take more each day- something that is proving to be very difficult to do.

just for fun we had an emergency visit to her surgeon on monday because i took her g-tube button out and could not get it back in.... gross. her doctor was able to push it back in but since it took some doing he had us get a radiology picture just in case it didn't go back into the right spot. it did. yeah. what fun. sarcasm aside lauren is on the upswing- "talking" lots and sleeping better. feeding continues to be a major source of frustration for all but maybe we'll get that figured out soon....

ok- so thanks for checking in w/us. hope this blog update finds each of you well and enjoying the heat.

l,
jen & fam