i am touched by all the comments lauren's blog received yesterday and am reminded of how much she is loved by so many- thank you. and thanks for bearing w/me as i figure this all out (blogging and this new world of caring for lauren). pls feel free to comment or ask questions about anything i'm posting. and forgive spelling errors.
the week ahead- on thursday lauren will see her favorite doctor to receive an update on her blood work. her hemotologist noted an abnormality in her red blood cells back in january (something called macrocystosis) and we're watching her blood carefully for changes.
she will also see her diagnostic pediatrician on thursday for a weight check and a discussion about implementing a feeding tube overnight to help her take in more calories. lauren is a peanut and has had some trouble gaining and maintaining a good weight. this particular doctor was brought in a few months ago to review lauren's medical hx to help find a diagnosis. she has such a varied presentation of medical "issues" (ha!) that it's been difficult to plan ahead for her care. we have been reactive on many fronts. so, this dr. and his team of specialists haven't come up with anything yet but we are hopeful that someday we might have a road map to help give us an idea about what's next but for now we're winging it.
5 comments:
Thanks jen. Will be keeping you both in prayer on Thursday.
Jen,
You are doing a great job! Lauren is so lucky to have you for her momma! Thanks for keeping us all informed. I know the whole blogging thing can be a bit overwhelming. If you need any help, just let me know. I'm not real technically savvy, but can help you with what I know.
Much love,
Stacy
O.K. So..."posting" is so out of my comfort zone but I need to say I am in awe of the Mom you are and how wonderful this is for you and for Lauren. I could not even maintain a baby book and you are documenting the road traveld by this amazing little being. I know it will help your heart see her and her accomplishments in a new way. I also know that she will one day read this and know truly how blessed she is to be born into your family.
This writer is at a loss for words. I'm so proud of you! I think you will find blogging very therapeutic. And I appreciate being able to keep track of Lauren's details. Love and prayers, Michele
JEN!!! You ROCK!!!! I have no idea how to "blog" (what a wierd word, right?!) and here you are, at large and IN CHARGE!!! YOU GO MOMMA:) Lauren, sweet pea, your mom is super duper awesome, and I, for one, am so happy to be a part of your world:) XOXOXOXOX
~Karen:)
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