good morning.... just wanted to share that lauren has an MRI tomorrow at AI Dupont. she will have twilight sedation instead of the full general anethesia. this MRI is to look at her brain and spine to see if there have been changes to her myelin since starting the B12 injections. hoping that there is documented evidence in her MRI of the changes we are already seeing in her behaviors- primarily motor re-gains and continued cognitive learning. if so, i will ask for more B12 with the thinking that if a little is helping, perhaps more would be better?
will let you know when i know the results. also, still waiting on the results of her latest blood tests for metabolic and/or mitochrondrial disorders as well as the results of her muscle biopsy.
with love,
jen
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