Lauren's GI imaging showed a mild reflux occuring in her upper GI but we're not sure how significant this is yet. I will discuss this with a few of her doctors to see if we need to try treating this problem with meds or if it's insignificant and not affecting her appetite.
On the B12 front- very good news here. Lauren is definitely moving around more- she rolls onto her belly again and will "army crawl" to get where she wants to go. She is having trouble standing given her pronating feet and hip problems (one leg is now significantly longer than the other) but hopefully the bracing and PT will help with that. Hip surgery is in her future, we're just now sure how far into the future- it's definitely taken a back seat of late.
Her spasms continue to give her pain throughout her days and nights- some are better than others. Her meds do seem to help but when we see her ortho doc next week we'll discuss the pain and see if there is anything else we can do to help her feel better.
Within the next week or so we hope to know when the G-tube procedure should be scheduled- we'll keep you posted.
Thanks for checking in with us.
Love,
Jen & family
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