so we met an amazing neurologist last week and are hopeful that she will help us find an answer as to what is happening in lauren's body- on a metabolic level. dr. scavina knows muscles and cells and really saw what i've seen from the beginning w/lauren- that there is a disconnect between her upper and lower body. for so long i think everyone just thought it was an orthopedic problem and although that is certainly true we also know there is a neurological aspect to her problem. so the bad news was having to take 8 vials of blood to send out to test for lots of new possibilities but the good news is that there are new ideas are on the table. for lauren that means a new vitamin to try for now and if we find out the underlying source of her muscle problems perhaps we'll make real progress with her mobility and at the least keep her body from experiencing another relapse.
9/14 tuesday is lauren's G-tube procedure at AI. Dr. Duffy is her surgeon and will take care of our little lauren. she will be admitted on tuesday morning and by thursday we should be able to take her home. will keep you posted...
thanks so much for checking in w/us.
love,
jen
1 comment:
Praise God for this new doctor and some possible new answers. Keeping you before the Lord in prayer.
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