what's new

ok- busy week. on monday we met w/lauren's ortho dr. to discuss her hips, meds, and muscle tone. Dr. Miller and his P.A. Linda Duffy were really pleased to see how well Lauren is doing from a motor skills perspective. After they spent some time w/her they also noted how loose her legs have become and they thinks this could be her body changing and not the effects of the botox injections and valium meds alone. He refered us back to neurology to meet w/someone who knows more about muscle problems and we'll meet with her tomorrow, thurs aug 19th. the hips are going to need surgery but we'll wait until the G-tube and the neuro stuff before we do that. phew!

we met w/dr. duffy again today- he's lauren's surgeon who will handle the G-tube procedure. we're "a go" for that and i will have a date hopefully by friday. he does surgery on tuesdays so we're looking at a tuesday in september.

really hoping tomorrow's mtng w/the neuro yields lots of info for us (i always hope this w/each new specialist!) since this particular neuro comes highly rec. from our PT Dorothy as someone w/lots of knowledge about tone and metabolism. dr. skevina (new neuro) may help us w/the B12 dosing, vitamin supplements, and immunizations problems that lauren has had. lauren may also (finally) have a muscle biopsy- more to follow on that another time....

thx for checking in w/us- it's been a long week but w/one more appt to go i am hoping we finish strong!

l,
jen